@vstormy Hi,
I see that you are in Michigan, as I am. Have you considered a consultation at the University of Michigan? Research medical centers like the U of M or Mayo Clinic are usually very helpful in educating their patients as well as understanding and treating diagnoses..

I go there on a regular basis for some rare conditions and I see the difference between U of M and smaller local hospitals that do not have the research/educational resources of a learning institution.

@vstormy, Just checking in. How are you doing? How is your husband doing?