Parotid cancer

Posted by vstormy @vstormy, Feb 2 12:38pm

I am new at this so not sure how this all works. But, I would like to know if there are any clinical trials for Parotid cancer and if anyone has gone through this. My husband had a small nodule on his neck for awhile, doctors said it was nothing. This past May it developed to quarter size, he went to doctor and they did a cat scan which showed some questionable activity, in August they did a pet scan which showed parotid spread to colon and adrenal gland. He was given 2 doses of chemo, which did not work, then 20 doses of radiation to the site. I am really concerned at this point. Can anyone help me with this? I am a two time cancer survivor myself. So it has been a rough time:(

Hi @vstormy and welcome to Mayo Clinic Connect. I can imagine that you are concerned and want to research all possible options for your husband. I'm bringing @denisebrown67 @tonyinmi @mrf and @sepdvm into this discussion as they can share their experience with parotid tumors.

Have you considered seeking a second opinion at a major cancer center?

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@vstormy I had a swollen parotid gland under my ear many years ago. I think it was about the size of a quarter. There was no biopsy or any other type of diagnostic. I was referred to an Ear Nose Throat (ENT) doctor. He removed it in his office and sent the tissue for a lab for analysis. It came back benign. The only issue I've had since the gland was removed, is that when I eat, that side of my face will sweat. You probably should get another opinion from a different ENT. I'm no doctor, but for that to spread to the colon???? Sounds too strange.
Tony in Michigan

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@colleenyoung

Hi @vstormy and welcome to Mayo Clinic Connect. I can imagine that you are concerned and want to research all possible options for your husband. I'm bringing @denisebrown67 @tonyinmi @mrf and @sepdvm into this discussion as they can share their experience with parotid tumors.

Have you considered seeking a second opinion at a major cancer center?

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yes, I have and after numerous months they have not given me answers to my questions.

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@vstormy

yes, I have and after numerous months they have not given me answers to my questions.

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@vstormy Hi,
I see that you are in Michigan, as I am. Have you considered a consultation at the University of Michigan? Research medical centers like the U of M or Mayo Clinic are usually very helpful in educating their patients as well as understanding and treating diagnoses..

I go there on a regular basis for some rare conditions and I see the difference between U of M and smaller local hospitals that do not have the research/educational resources of a learning institution.

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@vstormy

yes, I have and after numerous months they have not given me answers to my questions.

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@vstormy, Just checking in. How are you doing? How is your husband doing?

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