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HELP! Husband's transplant going down hill

Transplants | Last Active: Feb 25, 2021 | Replies (16)

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@pinkyj

I am sorry to hear of your husband's poor health. I had a liver transplant in August 2020. I had no known allergies, but two medications gave me a lot of trouble: TACROLIMUS made it hard for me to talk and think straight, I had a seizure and hallucinations. This happened after being out of the hospital only a couple of days. I now take CYCLOSPORINE (since mid-August 2020) with no bad effects so far. The other medication is BACTRIM. It apparently caused acute kidney failure and I ended up in the hospital for another 5 days. That was about 3 months post transplant surgery. BACTRIM was replaced with three PANTAMADINE respiratory treatments 30 days apart - last one was a few weeks ago.
Have you suggested to his docs a replacement medication(s)?
I will keep your family in my prayers.
Pinky Johnson

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Replies to "I am sorry to hear of your husband's poor health. I had a liver transplant in..."

@pinkyj, I am a transplant recipient, and have been on tacrolimus for 12 years with no problems. I appreciate that you shared your experience. That must have been frightening for you and for your loved ones. I'm so happy that your transplant team found a solution as well as a medication that works for you!
Have you had a bad reactions to medications in the past? Or was this a complete surprise? How about the kidney Did it recover?

Oh, before I sign off, I want to say Welcome to Connect. How are you doing as you approach your 6 month anniversary?