Connect
← Return to HELP! Husband's transplant going down hill
Discussion
HELP! Husband's transplant going down hill
Transplants | Last Active: Feb 25, 2021 | Replies (16)Comment receiving replies
Thank you so much for responding. Here's the kicker. He got his transplant from JOHNS HOPKINS!! Y'know? The best in the world!! I did take hi to another hospital. There's one thing I didn't tell all of you. When things started going downhill, my hubby got severely depressed. Be stopped taking his meds for around2 weeks. He's the one that was upfront and honest about it. They did t know. His labs NEVER CHANGED!!! You'd think they have so e type of psychological help after a transplant. Nope. Anyway, he's looked at as being "non compliant" now. I think that's why they stopped caring. I think it's dead wrong. He was depressed and sick. I hope and pray to GOD somebody will eventually listen. Thank you ❤️❤️
Replies to "Thank you so much for responding. Here's the kicker. He got his transplant from JOHNS HOPKINS!!..."
Hi @chantel I too am a post-liver transplant patient. I had mine at Mass General in September 2016. Hopkins is definitely one of the top four hospitals in the country along with Mayo, Mass General, and Cleveland Clinic but even the best hospitals can occasionally have doctors and/or nurses who are not up to their standards. Hopefully those people won't be there for long.
I agree with @athenalee, you really do need to keep track of your husband taking his medications, it's in his best interest. I have heard that many people struggle with depression when they are post-transplant so his transplant team should really be more understanding. If you are going to a new transplant center, may I suggest that you check their rating on the SRTR.org database? I hope things will be smoother for him and for you at a new facility.
JK
Connect
I’m sorry your husband is struggling. It’s fortunate he has your support! Please make sure he takes all of his meds as directed. Organ rejection or complications can occur at anytime. If you cannot change hospitals, you might discuss your experience with the hospital’s patient advocate. When I was having issues while in the hospital, I discussed my concerns with the patient advocate and they were helpful.