Hello, fiesty76. You are such a joy. Your thoughts and prayers have buoyed me and given me comfort in the knowledge that I'm really not alone. We're really not alone. I cannot explain to you what a remarkable difference you and the others from Connect have made in my life. This last 6 months or so have been troubling, frightening, challenging. I was running out of hope for Rob's future. I am indeed exhausted from these years, it's taken it's toll, but as I've found Mayo and Mayo has brought so much healing within my body and spirit, I've found new strength from within. I have hope. We are seeing the beginning of a breakthrough in his hell.....

He saw the Mayo dystonia specialist, a leader in this field.....and is now officially his patient. He is scheduling Rob with other departments and specialties for diagnoses, treatment plan. He will take over his botox injections, the one treatment that gives him some relief. Now he will get the treatment from the best!

How wonderful is this!

I was watching my son withdraw into himself and fearful I was losing him. I've spent several days with him helping him understand the doctors with whom he'll be working are special, care and tops in the fields. They can be trusted. Today, I began to actually believe this is happening. Hope has arrived.

Thank you for giving your gifts to me. The support I felt from you and the others has given me strength to stay strong and calm. I can almost breath. Almost hope.
Blessings to you, from me.
And, thank you.
elizabeth