Hello @mhi. I've been losing weight too - 21 lbs. since mid-November. However, that's when I was taken off Prednisone and Actemra (GCA) because my WBC and neutrophils were too low. I'm back on Actemra, every two weeks now, but still losing weight. I'm also being investigated for UC/Crohns, etc. so doctors are unsure which is causing what.
While I'm delighted to be losing some of the 50 lbs. I gained while on Prednisone, it's a bit of a worry too. Has anyone else experienced that much weight loss after stopping Prednisone? Would love to hear from you! My best, Laurie