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@mhi

@5chances sorry you asked me about my weight I am still not able to gain but I am not loosing. How about your weight? Are you stable? How do you know when you add things to your diet if it is working or not? Still working with a nutritionist?

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Replies to "@5chances sorry you asked me about my weight I am still not able to gain but..."

I haven’t seen nutritionist for over a month. I think she was a bit disappointed in me because I was hesitant on a few things. I need to reschedule because we’ve agreed to just focus on food building because that’s where I’m stuck.
I test out foods in very small amounts for a couple days at a time. It’s like two tablespoons per serving and only once a day. If I have little to no stomach pain and no diarrhea then I keep it at small amounts but will wait a week to try something new.
How do you test/determine if something works for you? Do you have food anxiety about trying something?

Hello @mhi. I've been losing weight too - 21 lbs. since mid-November. However, that's when I was taken off Prednisone and Actemra (GCA) because my WBC and neutrophils were too low. I'm back on Actemra, every two weeks now, but still losing weight. I'm also being investigated for UC/Crohns, etc. so doctors are unsure which is causing what.
While I'm delighted to be losing some of the 50 lbs. I gained while on Prednisone, it's a bit of a worry too. Has anyone else experienced that much weight loss after stopping Prednisone? Would love to hear from you! My best, Laurie