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Has anyone with UC stopped responding to Entyvio?
Digestive Health | Last Active: Jul 7 12:41pm | Replies (60)Comment receiving replies
@rfan4433 Welcome to Mayo Clinic Connect, a place to give and get support.
Treatment was working for almost two years for ulcerative colitis but now unfortunately it is not. You want to connect with members like you.
You'll notice that I moved your question to a related discussion. I did this so you could meet with similar members like @skolotilin @dval, in a central location. You may wish to scroll through the past comments in search of information and connections with members.
Below I have linked older discussions related to this topic. You may also wish to scroll through and read these posts.
- Constipation with ulcerative colitis https://connect.mayoclinic.org/discussion/ulcerative-colitis-250dac/
- I’d like to meet others with ulcerative colitis I’d like to meet others with ulcerative colitis https://connect.mayoclinic.org/discussion/i-have-ulcerative-colitis-and-wondered-if-anyone-here-has-it-and/
May I ask if your provider has suggested a dietitian to manage symptoms?
Replies to "@rfan4433 Welcome to Mayo Clinic Connect, a place to give and get support. Treatment was working..."
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I have been following a whole food plant based diet for nearly two years, which has been wonderful (no meat, daily or processed foods). The 13 months in remission was blissful. This past flare has been weeks of hell, with more weight loss, pain, and hospitalization for severe dehydration. They also gave me IV steroids. I started the Stelara 3 weeks ago (loading dose infusion) and I am hoping the symptom improvement is from that and not the prednisone, which I have tapered down to 25 mg daily thus far. I have gone from 10-16 daily, bloody mush BMs to 2-3 daily formed stool without seeing blood for 2 days. I have also stopped losing a pound a day (can't afford to lose anymore weight). I was also too weak to take my daily walk, which I have resumed for 5 days now, so there is improvement and for the first time in weeks, I am hopeful....