← Return to Should 4+ Pseudomonas be treated?

Discussion

Should 4+ Pseudomonas be treated?

MAC & Bronchiectasis | Last Active: Jun 24 7:41am | Replies (115)

Comment receiving replies
@windwalker

Hi Rita. I am no physician as you well know, but it appears to me that you are not being left on the antibiotic long enough to truly stamp out the pseudomonas. I was put on tobramycin in 2016 to treat mine. I felt better and all coughing ceased after one month on it, but my dr at Mayo would not take me off off it until the spring of 2020. Remember, the reason you are suseptible to pseudomonas doesn't go away with medication. We have damaged lungs and will forever be fighting against opportunistic pathegens. I had been on both cipro and tobramycin for four yrs to get it good and gone.

Jump to this post


Replies to "Hi Rita. I am no physician as you well know, but it appears to me that..."

Thank you everyone for your advice. The ridiculous thing is that, without any treatment, the pseudomonas I have did not show up on most recent sample in Dec. I sent this one fed ex and it was tested within two days rather than the previous over a month for my last 3 samples which was caused by the slowness of the US mail. Ut Texas kept telling me to mail it but I ignored them this time.

My theory is the pseudomonas feasted on the sputum during its trip across country and grew to show up as "many" although there were probably "few" to start. No nebbing. No airway clearance. Not even any breathing. The pseudomonas must have had a great trip.

My recent sample did show klibsiella another nasty bacteria I acquired in the hospital. Dr McShane said we could take care of that with a week of Cipro. Because I have been unable to get my breathing to where it was a year ago I agreed to try it. Today is day 8 since I finished and I have been having terrible abdominal pain and feeling sick most of the day. Curiously it didn't start until the last two days of the course of antibiotics.

And worse I am having an exacerbation of chronic bronchitis. So the klibsiella was not the problem and I am worse since treatment.

I've only wanted to get back to where I was before the deterioration in my breathing this year. My next step is to do a pred burst snd then 3x a week of azithromycin. Dr McShane had been against using it for inflammation in case I need it again for infection. But with no MAC showing up and my 79th bd next week it seems unlikely I will have treatment again. However it's going to take a while before getbthr courage to try the azithromycin.

There are many things wrong with this body which has clearly lasted beyond its use by date. But I still hope to get some qol.