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To vaccinate or not to vaccinate? That is the question.

Transplants | Last Active: Jun 28, 2021 | Replies (313)

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@athenalee

Thank you for asking! It’s been a short but intense journey from being a perfectly healthy individual to being diagnosed with stage 3 liver cirrhosis in July 2019, followed in October with finding out the cirrhosis was caused by PBC. Then almost bleeding to death twice due to bursting varices, having the TIPS procedure, and then in early August getting on the transplant waiting list. It was truly a blessing to receive my new liver on August 20.

My energy is good these days, although I’m struggling with gaining weight...still only weighing in at 104 (5.5 ft. tall). I have tremendous muscle and joint aches (possibly drug side effects?), I have pretty bad tremors, and my right leg is numb (not sure why...side-effects? probably have to see a neurologist). Liver enzymes fluctuate some between normal range and being elevated, but except for a very low platelet count most of the other blood indicators are good. I’m eating healthy, being good to my liver, walking regularly, taking my meds as directed, and trying to remain upbeat despite being isolated and unemployed. All things considered I’d give it a “not bad!”

I’d love to hear from others how they progressed post transplant.

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Replies to "Thank you for asking! It’s been a short but intense journey from being a perfectly healthy..."

@athenalee, pop over to this discussion to meet other liver transplant patients:
- Liver transplant support group https://connect.mayoclinic.org/discussion/liver-support-group/

@athenalee, I want to invite you to join myself and other liver transplant recipients. Here are a couple of discussions to get you started:
Simply click on the blue link, and you will be taken directly to the discussion where you can ask your question so that our liver transplant members will see it.
- Liver transplant support group
https://connect.mayoclinic.org/discussion/liver-support-group/

- Transplant anti-rejection medications. What's your advice?
https://connect.mayoclinic.org/discussion/your-anti-rejection-medications/