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‘‘Twas the Night Before Christmas”

MAC & Bronchiectasis | Last Active: Jan 12, 2021 | Replies (76)

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@windwalker

Jennifer, I hope you don't mind my jumping in here on this conversation. I first learned about nebulizing 7% saline in 2010 after reading a French medical journal that stated that mac patients were treated with inhaled 7% saline and had great success. They did not indicate that other drugs were used along with it, so I cannot say that it alone will get rid of mac. After reading that article, I asked my pulmonologists (several) about trying it. Their response was, "I have never heard of it and don't know what you are talking about." Well, I got sicker and sicker. I finally went to the Mayo clinic in 2013 and asked my dr if he would prescribe it for me. He said "Of course." because he was familiar with it. After using the saline and being on antibiotics; the frequent exacerbations stopped along with my annual hospital stays. I have to tell you that when I joined this site in 2013, NOBODY was doing the nebulized saline! The members here were suffering much worse with symptoms and flare-ups. Many were convinced they would even die. After pushing the 7% saline over the years; I see a big difference in our member's health and attitude. Lung clearance is lung cleaning. The less gunk left down in the lungs, the less likely the infections. Doing it twice a day gets the best results.

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Replies to "Jennifer, I hope you don't mind my jumping in here on this conversation. I first learned..."

I have only been here a couple of years, but I agree we are definitely seeing a big improvement as we encourage people to advocate for themselves and get on the 7% saline.
I think it probably falls in the same "low tech" category as using ice for post-surgical swelling - nobody profits from it, so there are no drug companies promoting it, and it takes a forum like May Connect to publicize it and get a lot of people benefiting from it.
My husband, who had a retirement career as an EMT, often says if drug companies could figure out how to charge for ice, it would cost $10 a cube - it's that good for swelling.
Sue

Hi Terri I was just reading what you wrote this 7% saline how is this used and I’m already on a nebulizer once a day for Mac called Arikayce today I’m a little down just thinking of it all remember I’m only few weeks into this whole thing I just need lots of positive things to read only because I’m a nervous nelly wish I wasn’t but Terri this is interesting I’d like to hear more about this thanks