I really am sorry for my late reply. The most debilitating symptom I have had is just not being able to think. Communicating with all of my doctors is very difficult. I have started writing down the problems I am experiencing and then, before each visit, I dissect my notes so I only share the information for each ailment with the relevant doctor. 5 doctors and all but 2 belong to the same network. Of course that leads to insurance issues. My PCP has to send a “Prior authorization” for each “visit” to the pulmonologist, rheumatologist and now to whoever I find to help my with my Eagles syndrome. Just navigating through all of this has really made dealing with my depression/anxiety and worse of all, the social anxiety I experience, overwhelming.
So, how can I fix this? You suggested a hospital system. I am very interested in Mayo. I have a niece who is a NP with Mayo in Rochester. I have not told my family about my illnesses. If I contacted my niece the cat would be out of the bag. My Social anxiety is that bad. I can’t even talk to my family anymore without panic attacks.
Can you help me? I need a push in the right direction as to how I can access a diagnostic team and become a patient at Mayo. I am not sure about insurance. I don’t want to go anywhere that won’t take my insurance so I suppose that would be the first hurdle. I am so grateful for you and all the Mayo Connect participants. I’ve learned more here than at my doctor appointments.