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I have extremely tight muscles. Nothing seems to help. Advice?

Chronic Pain | Last Active: Dec 15, 2020 | Replies (16)
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@sunnyflower

Good morning Elizabeth,
After reading your symptoms, it appears as if we are twins!

Except for your alderestone problem, I instead have adrenal insufficiency where are my adrenal glands do not put out cortisol, the body’s natural anti-inflammatory, equivalent of about 5 mg of prednisone per day.
I to take spironolactone and Bumex. Spironolactone is potassium sparing however, Bumex is not.

I am glad your endocrinologist has found the right pharmalogical fix and that you are responding well to that. I was thinking it might be prudent to talk to that doctor about taking some supplementary potassium on the days and at the time you take your bumex provided that you have food on your stomach because potassium can be caustic and cause some stomach pain.

I take my share of magnesium but not sure it’s helping. I take 400mg with breakfast which includes Bumex and Spironolactone aka BP/CHF meds, 400mg with my afternoon diuretics/ blood pressure and CHF medications and then 400mg at bedtime about an hour before. I only recently added the extra 200mg so can’t tell if that’s working yet or not.

I have Hashimoto’s thyroiditis, the autoimmune thyroid disease among many other diseases and conditions. Most of my vital organs and several of my glands are diseased and then there’s things like severe osteoporosis (daily Prednisone over 20 years and lots IV and large taper doses before daily, 3 pelvic, 1 rib and then other small fractures) arthritis, neuropathy and the list goes on.

What gets me through my unrelenting pain and suffering is my intimate relationship with God; His comfort and peace through Christ which surpasses human understanding, Philippians 4:7. And, knowing He has a purpose in my suffering, “For I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us.” Romans 8:18.
Warmest wishes for relief and many blessings, Sunny. 🙏😊

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Replies to "Good morning Elizabeth, After reading your symptoms, it appears as if we are twins! Except for..."
ess77 - Elizabeth | @ess77 | Dec 13, 2020

Oh, my goodness, Sunnyflower!!! I've taken prescription potassium for many years. My potassium blood level has never in my alult life been within the normal range. It always runs low, below normal. At one time, I had to be taken to the hospital by rescue from a party at a friends home. My potassium was 2! Low normal is 3.4 or 3.5. Now, before I left the Mayo hospital a few weeks ago, potassium was up to 4!!!!! I do not remember it ever being that high! Perfect. Thyroid med level is good now, since hospital as well. Prednisone has caused me longtime problems, as well. I was diagnosed at Mayo in the 80's with sarcoid, on an extremely heavy dosage of prednisone for 8 months, then tapered down after having serious brain/thinking/suicidal thoughts. I have a love/hate relationship with that drug. It did save my life. Put the sarcoid in remission. I have flare-ups occasionally, my lungs are the weak spot for inflamation. Steroids are usually involved with treatment, with z-pack, inhaler, prayer. Lots of prayer. I don't know what prednisone has done to my organs. No definitive answers to that. Just know my body has a lot going on......osteoporosis, CHF-better EF in hospital, from 50% a year ago to 70% few weeks ago in hospital. Doctor attibuted most of the increase to a difference in technician measuring techniques during the echo. I attribute it to the water therapy pool 2X weekly. BTW: I haven't been to the pool since a couple weeks before I was in the hospital.....I'm stronger now, so will be in the pool this coming week! My word....you were on prednisone for 20+ years? and IV treatments? I've been on it throughout the last 40 years, off and on, but never had IV treatment. I so thrilled to have the right regulation of my thyroid. HAd no idea what a booger it can be! Heart rthym, skin!!!, nails!!!, hair!!!!, brain, cognitive abilities, and more. Hospital docs reduced my levothyroxin, now even my nails are improving. Dry skin has been a problem for a hundred years, but it really got ridiculous the last couple years. My dermatologist recommended Veniderm??? from CVS or Walmart. Any suggestions? Well, sunnyflower, what a hoot! You, ashby1947 and I have much the same kinds of issues and lives. It's wonderful chatting with you both, sharing with folks who truly understand and I don't feel like I'm whining or having a pity-party. I allow myself 1 pity-party a month. That's fine, but no more. But, to be able to discuss with folks who know and know first hand what I'm feeling is amazing. I have a very alone life, for many years, due to health issues, and caring for others and just life. Aloneness is my normal. Loneliness comes and goes, but you are a gift. Thank you for being here. Elizabeth

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