← Return to JAK2 Mutation, Low Iron and High Platelet count

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@dwlowrance

MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about 3 years. You give me hope that there is a connection between Peripheral Neuropathy in my left leg and ET. Exome Sequencing tests may help my JAK2 gene mutation get some attention. I will ask my Oncologist to run the test. Thanks again for your analytical take from MIT. Please keep posting. Best Regards, Dave L.

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Replies to "MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about..."

The Exome Sequencing and Whole Exome tests are very expensive and many insurance companies won't pay for them because many genetic tests are considered "experimental". Cornell placed me in a research trial along with two of my daughters because we have a family history of neuropathy going back 5 generations. My daughters are starting to experience the same symptoms as me. But do ask. Not sure there is any connection between my blood cancer and my Axonal Neuropathy. Good luck.