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@helen2209

I understand that it is all very confusing. First are the difgerent diseases in the MPN geoup, ie: ET, PV and primary MF. Over the course of the disease the PVvand ST can turn into a post MF. They are all rare diseases and each patient experiences different side effects and gets different medications. We all do need an understanding doctor Hematologist who can tell you how to deal with this all. Good luck and be safe!

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Replies to "I understand that it is all very confusing. First are the difgerent diseases in the MPN..."

Allow me to be the acronym buster (self-proclaimed 🙂
MPN = Myeloproliferative neoplasms, a group of diseases that affect blood-cell formation.
ET = Essential thrombocythemia, an uncommon disorder in which your body produces too many platelets.
PV = polycythemia vera, a blood disorder in which the body makes too many red blood cells.
MF = Myelofibrosis, an uncommon type of bone marrow cancer that disrupts your body's normal production of blood cells.
(ST, I believe this was a typo for ET.)

The JAK2 mutation is acquired and not inherited. People are not born with this mutation, but instead develop it in their bone marrow cells sometime later in life. @pattitoo, I would question your doctor about this and encourage you to get clearer answers.

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