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JAK2 Mutation, Low Iron and High Platelet count

Blood Cancers & Disorders | Last Active: May 24, 2021 | Replies (68)
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@colleenyoung

@pattitoo, here's more information about lab testing done for JAK2 mutation https://labtestsonline.org/tests/jak2-mutation

I'm so glad that @mjpm2406 and @helen2209 have similar experiences to share to help you know what questions to ask. Pat, what did your doctor say the next step is?

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Replies to "@pattitoo, here's more information about lab testing done for JAK2 mutation https://labtestsonline.org/tests/jak2-mutation I'm so glad that..."
pattitoo | @pattitoo | Nov 28, 2020

Colleen.
All he said was to see him in 6 months - when I questioned him about the JAK mutation he said I was born with it...being 78 in age, never in my I have I ever been told anything about JAK 2, also never an out of range platelet count. I feel I should get an appointment with him and get answers and more testing. Slight Anemia is all I have ever had, the last episode I was placed under his care and had 2 iron infusions, eventually my levels were in a normal range.
Several years ago I was under the care of an Heme Oncologist - Iron issue etc and I was a regular blood donor - he suggested I could give, however not so often, all was well with a different Iron Supplement, a Polysaccharide-Iron Complex. I did cut back on donations, significantly and have not donated with the JAK 2. diagnosis. Still pondering what said I had JAK 2 - as blood work looked good to me.
I am most grateful for this group of posters who are sharing and your help Colleen.
A thank you from my heart to each and everyone of you.

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