Lung Rumble- Should I take Prednisone?

Posted by fracturedd @fracturedd, Nov 23, 2020

I've been dealing with this lung rumble/congestion for a couple months. I'm definitley not as active since the begining of the pandemic. Over the summer I went on prednisone which cleared up the lung congestion. Started at 15mg for 1 week,10 1 week, 5 1 week, 2.5 1 week and then 2.5 every other day for 2 weeks. For the most part my lungs felt pretty clear. Now I'm about 3 weeks no prednisone and this darn left lung is rumbling. It's driving me crazy because I have so much time to think about it. I'm trying everything alternative-- and it seems to help-- a bit, but it's still there on and off throuhout my day. My pulmonoligist said maybe i should just stay on a low dose long term- but I'm scared that will be the begining of the end... I hate taking medicine. Anyone on long term prednisone? Should I throw the towel in and start the prednisone again or any other suggestions? (I haven't been able to go see my doctor because I have trouble wearing a mask for extended time)

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@fracturedd

@merpreb Yes, I agree. I'm not really sure why her nurse had to consult with a PA istead of my pulmonologist. However-I'm actually feeling better! Minimal rumble yesterday, slept through the night without much interruption, and woke up and my lung felt pretty clear. I always make the suggestions to my doctor then she will approve or state why she dosen't approve. Mostly we agree. Is this not normal? I mean this is a "childhod disease", I'm now 42, but I feel like doctors really don't know how to treat me... so they mostly just monitor me. It really is strange..The hardest part is my Rheumatologist who I had a wonderful relationship with just transferred out of state at the begining of the pandemic. They really balanced each other out and that made me feel good. I don't know- I'm just gonna think positive for today- my blood work looked perfect last month so I hope that is a good indication. I'm 1year behind on my cat scan...

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@fracturedd- Do you mean that you are late by one year of having a CT scan?

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@merpreb

@fracturedd- Do you mean that you are late by one year of having a CT scan?

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@merpreb Yes, lol spell check! CT scan.

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@fracturedd

@merpreb Yes, lol spell check! CT scan.

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@fracturedd- Why are you late having it?

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@merpreb

@fracturedd- Why are you late having it?

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@merpreb I have a really hard time wearing a mask.

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@fracturedd

@merpreb I have a really hard time wearing a mask.

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Awww, @fracturedd- so many people with lung disease have problems with masks. I always felt like I was going to suffocate. Then another mentor mentioned cages for masks. They don't make you feel smothered. Google it on Amazon. Then go get your scan! Let me know if you find them.

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@fracturedd

@merpreb I have a really hard time wearing a mask.

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@fracturedd, I agree with @merpreb. You don't want to delay follow-up or medical care because of a mask.

Facemasks are recommended over face shields. Facemasks fit snugly against the face and provide better protection to prevent respiratory droplets from leaving your mouth and nose and potentially infecting another person nearby. See more from American Lung Association here: https://www.lung.org/blog/covid-19-masks-and-shields

Mask brackets are cage-like frames you wear under your mask. Their effectiveness hasn't been tested, but proper fit (like with any mask) is important. See more info here: https://health.clevelandclinic.org/do-face-mask-brackets-work-and-are-they-safe/

Have you considered contacting the hospital to find out what accommodations may be possible for you?

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@colleenyoung

@fracturedd, I agree with @merpreb. You don't want to delay follow-up or medical care because of a mask.

Facemasks are recommended over face shields. Facemasks fit snugly against the face and provide better protection to prevent respiratory droplets from leaving your mouth and nose and potentially infecting another person nearby. See more from American Lung Association here: https://www.lung.org/blog/covid-19-masks-and-shields

Mask brackets are cage-like frames you wear under your mask. Their effectiveness hasn't been tested, but proper fit (like with any mask) is important. See more info here: https://health.clevelandclinic.org/do-face-mask-brackets-work-and-are-they-safe/

Have you considered contacting the hospital to find out what accommodations may be possible for you?

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I don t recommend the use of plastic shields vs face masks; is is stipulated that the face mask offers superiors protection. The infectious particles are forced upwards from the plastic mask; STILL it is a better choice that nothing.
Since it was indicated that wearing masks were a problem for fractured, my intent was to offer the best worst solution rather that another unsuitable one.

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@colleenyoung

@fracturedd, I agree with @merpreb. You don't want to delay follow-up or medical care because of a mask.

Facemasks are recommended over face shields. Facemasks fit snugly against the face and provide better protection to prevent respiratory droplets from leaving your mouth and nose and potentially infecting another person nearby. See more from American Lung Association here: https://www.lung.org/blog/covid-19-masks-and-shields

Mask brackets are cage-like frames you wear under your mask. Their effectiveness hasn't been tested, but proper fit (like with any mask) is important. See more info here: https://health.clevelandclinic.org/do-face-mask-brackets-work-and-are-they-safe/

Have you considered contacting the hospital to find out what accommodations may be possible for you?

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@fracturedd,- Good morning. here is the link to what I bought. There are 3 of them in three different sizes. They are washable in mild soap and water. https://smile.amazon.com/gp/product/B08BQ9B45J/ref=ppx_yo_dt_b_asin_title_o08_s00?ie=UTF8&psc=1

I like these because they are rigid enough to keep the mask of your face but not too rigid either. I place the bracket/cage inside the mask and then put the mask on. I then re-adjust if necessary.

I love Colleen's suggestion about contacting the hospital to see what they suggest about calling the hospital and asking them for help.

Do you think that you can do this?

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@merpreb Thank you! I will defenitly give it a try. I'm sure the hospital will let me come in super early, but it is still a very busy hospital. My blood tests were all perfect, my walk test is good... I don't know,, I really hate to expose my self to germs right now. I think the lung rumble is a side effect of going on and off prednisone this past year. I've never taken prednisone in the past. I selpt all night without my chest rumbling and woke up clear lungs- so this is good. Hopefully I will keepp improving. I'm going to place the order now for the mask inserts, I'm excited to try them!

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