@merpreb Yes, I agree. I'm not really sure why her nurse had to consult with a PA istead of my pulmonologist. However-I'm actually feeling better! Minimal rumble yesterday, slept through the night without much interruption, and woke up and my lung felt pretty clear. I always make the suggestions to my doctor then she will approve or state why she dosen't approve. Mostly we agree. Is this not normal? I mean this is a "childhod disease", I'm now 42, but I feel like doctors really don't know how to treat me... so they mostly just monitor me. It really is strange..The hardest part is my Rheumatologist who I had a wonderful relationship with just transferred out of state at the begining of the pandemic. They really balanced each other out and that made me feel good. I don't know- I'm just gonna think positive for today- my blood work looked perfect last month so I hope that is a good indication. I'm 1year behind on my cat scan...

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