Yes, I have all my records, I keep a daily journal of phone calls, symptoms, appointments, to do list, questions. I am prepared for the visit. The problem lies in anticipation. I have been passed around to to G.I., Nephrology, Neurology, three different urologists, three different Interventional Radiologists. I wait several weeks and months for appointments and when I get there I have to reply the two year account, then without fail I am told that cysts don't cause these symptoms and further testing or imagery or try these pills....and I'm exhausted.
I am prepared for the the same response at this latest appointment in December, so I'd like to start gathering answers and options. The Mayo Clinic has published some very interesting procedures for the treatment of what appears to me to be my condition. The RIRS (Retrograde Intra-renal Stent) for beginning.
Can we begin that conversation? About how do I get to a doctor that performs this procedure or is in a position to to recommend a procedure or treatment that can deliberately confront the cyst that has caused me pain for over ten years, and made me sick for over two years now.
@samuellandon I wish we could take pain away. Could you please keep us posted on your December visit?