Cisplatin: What side effects can I expect?

Posted by earscan @earscan, Nov 20, 2020

Has anyone had this before? What are the side effects? How does it compare to Fluorouracil which I have had before with no side effects. Thank you for your feedback. Gina

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@bluelagoon

@earscan @merpreb @colleenyoung Gina, Sounds like you already got some great perspective from Merry! Since I had Cisplatin in 2018 I thought I'd add my 2 cents. I just checked my file because I couldn't remember what it was given with- it was Cisplatin & Pemetrexed for 4 cycles following lung resection surgery. That combination was known to be better tolerated than others and I can testify to that. I never got worse than some ear ringing and a hangover feeling that was managed with just one of the 3 meds I had available, along with some extra rest and getting outdoors for some gardening (great fresh air/exercise combo.) So, you may want to ask your docs more questions on what you more likely could expect.

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@bluelagoon- It's so great to hear from you! I love it when you put your 2 cents in! I had cisplatin in 2007 and was not offered to me. I had it with Navelbine (targeted chemo). I went twice a week for 4 months. I am so glad that you had an easier time than I did.

I think, @earscan that @bluelagoon offers great advice about contacting your doctor regarding the chemo protocol and the infusion nurses when the time is right. Also, I would suggest that you write down every single question that you have and bring it with you.

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Thank you so much for your replies. I had fluorouracil last time for my cancer and had no side affects. I decided to get a second opinion on this because I cannot tolerate any pain meds and am very sensitive, being a blue-eyed redhead. On top of a radical hysterectomy, the cisplatin could have side affects, but maybe not; however, I checked and the fluorouracil is an adequate substitute so not sure why they are sayings it's my only course of action. It's a terrible burden actually when you have worked in the healthcare field for 40 years LOL!

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@earscan

Thank you so much for your replies. I had fluorouracil last time for my cancer and had no side affects. I decided to get a second opinion on this because I cannot tolerate any pain meds and am very sensitive, being a blue-eyed redhead. On top of a radical hysterectomy, the cisplatin could have side affects, but maybe not; however, I checked and the fluorouracil is an adequate substitute so not sure why they are sayings it's my only course of action. It's a terrible burden actually when you have worked in the healthcare field for 40 years LOL!

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@earscan- Wishing you the best today with your biopsy. Rest, heal and let us know how it turns out and how we can help!

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Thank so much, Merry. Next week I find out the results. Will determine a lot of how they approach my surgery. Best to you and yours this Holiday Season! Gina

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@earscan

Thank so much, Merry. Next week I find out the results. Will determine a lot of how they approach my surgery. Best to you and yours this Holiday Season! Gina

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@earscan- I'm a couple of days late in asking you this. How were the results of your biopsy?

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Thank you for asking, Merry. The neck biopsy was negative. Yea! Now it appears that I will have a radical hysterectomy with lymph node resection and probably no chemo or radiation. Confusing because 3 different doctors said 3 different things so I'm going with what my surgeon said and this is scheduled for December 22nd or maybe a Saturday before if they can get me in. How are you doing?

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@earscan

Thank you for asking, Merry. The neck biopsy was negative. Yea! Now it appears that I will have a radical hysterectomy with lymph node resection and probably no chemo or radiation. Confusing because 3 different doctors said 3 different things so I'm going with what my surgeon said and this is scheduled for December 22nd or maybe a Saturday before if they can get me in. How are you doing?

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@earscan- I am so relieved for you that your neck biopsy was benign! Phew! You certainly have been through the ringer! I will keep you in my thoughts. Stay healthy until then.

Thank you for asking. I'm waiting for a CT scan to be scheduled- 4 month follow up. But I'm good.

Do you have family with you?

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Glad to hear it on your part! My husband is with me and my son is 2 hrs aways but he's very supportive. Guess for all of us it is a long journey - I was lucky last time, had biopsy, diagnosed, small surgery, chemo & radiation and it was all done in 5 mos. But I am hopeful about not having chemo & radiation. Looks like you are on the downhill to recovery. Thanks for being my mentor - you're the best! Gina

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@earscan

Glad to hear it on your part! My husband is with me and my son is 2 hrs aways but he's very supportive. Guess for all of us it is a long journey - I was lucky last time, had biopsy, diagnosed, small surgery, chemo & radiation and it was all done in 5 mos. But I am hopeful about not having chemo & radiation. Looks like you are on the downhill to recovery. Thanks for being my mentor - you're the best! Gina

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@earscan- I wish you all the best today and hope that your recovery is easy and quick. Please let me know how things went when you have some strength back!

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