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2nd withdrawal of prednisone after initial Steroid avoidance protocolTransplants | Last Active: Nov 16, 2020 | Replies (8)
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Replies to "Hi, @jullieh. I am extending a virtual handshake to welcome you to Mayo Connect. I am..."
Thank you for the link and your story, that is helpful! Mayo said i could try to go at and said "we will see how it goes." he said there is not a lot of data regarding being off prednisone then back on, and then how successful it is getting off again during the first year. In theory i still have some of my induction agent in my system until around 12 months, so that could still have some protection against rejection. My Vegas Nephrologist said that when he was at John's Hopkins for his training they found that the steroid withdrawal was causing increased rejection. They were using a different induction agent than i had though. They chose this induction agent on purpose to be able to get me off the steroid. I think that because of the off, on, and now possible off again situation, they just can't say how much of an increase I risk of rejection I have, because it had not been studied. So they each have their own ideas and previous patient experiences that they base their recommendations on. I'm happy to hear your success story though, thanks for sharing! ❤️