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New here with DCIS and gene mutation

Breast Cancer | Last Active: Oct 29, 2023 | Replies (17)

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@astaingegerdm

@coffeefreak - Welcome to Mayo Connect! Sorry to hear the bad news. First- don’t delay treatment. I had mastectomy some years ago. They started reconstruction at the time, but completion had to be delayed due to my low blood count. Being Covid times you would be better off doing reconstruction later. I don’t think it really matters.
It will be uncomfortable. Pain was not too bad. You will go home with drains- I did not like it. That’s what I remember the most. I also remember that I went to a Graduation party a few days later! I was home for a while and started chemo before I returned to work.
Any major surgery is an ordeal that takes its time to heal.
I hope someone else here can add some more advice.

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Replies to "@coffeefreak - Welcome to Mayo Connect! Sorry to hear the bad news. First- don’t delay treatment...."

@coffeefreak, @astaingegerdm
I had partial mastectomies, going from DDD down to an A or A- (!). The affected breast seemed to be more painful and the unaffacted breast had little pain. It was explained that the affected breast needed to be reshaped as lumpectomies came from two different sides. Yes, the drains were a royal pain in the battootta! However, I slept in a LaZyBoy chair and that helped a lot. It was quite some time before I could sleep in a bed again because I also sleep on my stomach, but following surgery I had to undergo 30 radiation treatments and then had scarring from that making the ridge of the breast feel like little chunks of cement. This has been helped considerably wearing a "swell spot." I don't remember the surgery or radiation stopping me from going or doing what I wanted to do except for the fatigue, but then I would rest a best and be on my way again. I even cooked and baked! Do check your area for a support group - I started out with a breast cancer support group but found the ladies didn't want to move forward, just complained a lot of their miseries and so I found a general cancer support group who have been quite positive and I enjoy being able to attend those, at this time just being virtual due to Covid. Stay positive, coffeefreak, and you'll be just fine.