Connect
← Return to Essential tremors and post polio syndrome and agent orange exposure
Discussion
Essential tremors and post polio syndrome and agent orange exposure
Parkinson's Disease | Last Active: Feb 3, 2022 | Replies (23)Comment receiving replies
@bruce0712 It must be difficult to experience tremors and at the same time pursue legal action against an enormous entity like Veterans Affairs. It sounds like the Navy should not have enlisted you due to your having polio as a child and your attorney believes you have tremors due to having polio coupled with the exposure of Agent Orange in Vietnam.
You are looking for a provider that can make the connection between polio, Agent Orange, and tremors. Did I get that right?
You said that what you are experiencing is rare. I have tagged members @margaretob @hopeful33250
@oldsalt1947 @glenner075 who have previously discussed similar topics.
I have also linked a previous discussion on this topic, as this may be helpful in your search for answers.
- Agent Orange and Neurological Disorders https://connect.mayoclinic.org/discussion/agent-orange-and-neurological-disorders/
I borrowed a mentor’s links from a previous post on this topic. The information may be information that you already have but just in case I have reposted it below.
- Diseases related to Agent Orange https://www.va.gov/disability/eligibility/hazardous-materials-exposure/agent-orange/related-diseases/
- Vietnam Veterans of America: Agent Orange https://vva.org/what-we-do/outreach-programs/agent-orange
- Service-Connected Disability Compensation For Exposure To Agent Orange for Veterans and Their Families https://vva.org/wp-content/uploads/2014/12/AgentOrangeGuide.pdf
Regarding finding a specialist, would you tell me more about what Mayo Clinic said regarding scheduling appointments? Have you been a patient at Mayo Clinic in the past?
Replies to "@bruce0712 It must be difficult to experience tremors and at the same time pursue legal action..."
wow, thank you very much! I made a phone appointment online, that happened on October 23 at 2pm. As I recall, I went through my details on the call, letting the person know what I was seeking as described, and after all of that, the lady put me on hold for about 5 minutes, telling me she was going to see if she could find an appointment in Neurology. She came back on the line to tell me she was unable to make any such appointments, plus there were no waiting lists, nothing anyone at the Mayo Clinic could help me with. I was willing to drive up to Jacksonville for an afternoon appointment whenever they could get me in. But to no avail.
I will pull up the material you pointed me to and send it to my VSO. He had made several claims that were all denied by the VA but we had not considered the post polio syndrome aspect until now, thus I was willing to be examined for that.
Connect
As far as I know, the tie between Agent Orange and Parkinson’s is presumptive - all you have to prove is that you were Nam during the years Agent Orange was in use. I have never seen polio discussed. The VVA may be a good resource