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Increased Risk of Stroke with PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 10, 2021 | Replies (17)

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@karinaph

I feel similarly. It feels like a big dark cloud hanging over me. I really try not to think about it. I’ve started taking a baby aspirin every other day... the Giant cell arteritis has me knotted up too. I want to taper but when I go down to below 10 mg I’ve gotten gca symptoms. Very scary. I just wish there was a a way to reset our immune response. I guess that’s the holy grail for all auto immune disorders. I’m taking turmeric, staying away from sugar, gluten. Any other suggestions?

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Replies to "I feel similarly. It feels like a big dark cloud hanging over me. I really try..."

I’m PMR/GCA and I know what you are saying about tapering. I’m on my second shot at 9 mg, down from a high of 80 at one time. The last time I was at 9, I started having strange eye problems in one eye. After a visit to the emergency room. My prednisone was increased to 30 mg. Eye problem went away. I’m saying a prayer for no eye problems this time.

@karinaph, There are a couple of other discussions that you might find helpful for suggestions. It looks like you have a good start with staying away from sugar. I also take a turmeric supplement.

- PMR and herbs, dietary supplements: https://connect.mayoclinic.org/discussion/pmr-and-herbs-dietary-supplements/
- PMR Diet: Foods to eat and avoid: https://connect.mayoclinic.org/discussion/diet-and-pmr/

@alanbruce @sharenb @desertsooner @rogernj67 and @lindapc may have some suggestions.

Do you feel the turmeric helps?