Thank you for that information and the links. I have been to neurologists, a spine specialist, and physical therapists (and caridologists rheumatologists and oral surgeons/tmj specialists) and had ct scans, mris, emgs, and xrays although no one has looked at the hyoid bone. The neck is straighter than it should be but evidently not enough for them to have much concern. They mentioned i could let them know if I wanted to look at pain management but then when I went back to talk about it the doc was like nah – and it was focused more on neck pain rather than the excruciating pain in my face, under my chin.
I will look more into TOS, because the weight of my chest is definitely rounding my back and shoulders. The physical therapy I've done multiple times did not do much for me.
At this point, I've seen many different specialists to try to rule out what the causes may be and there hasn't been a definitive answer beyond trigemenial neuralgia