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DiscussionStabilization of medications post Septum, Apical Myectomy
Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 30, 2020 | Replies (6)Comment receiving replies
Replies to "I have been working with my new heart failure doctor since July to adjust my meds...."
Thanks for your honesty. I have read alot of posts. Everybody's recovery is their own story and we are all different and like you said have different lifestyles and metabolisms. I have read some never used a walker after surgery, and others had pain for a couple of weeks and went to rehab two to three weeks after surgery. I used a walker then cane, still not in Cardiac rehab three months out because of side effects from meds,feeling dizzy, and some med combinations sent me to ER, admitted to hospital, walk like I'm drunk. I have hope eventually it will all be fine but getting there is just going to take more time. I think accepting that this is my life now, living with HOCM, now just HCM, well I miss my old life. I never had symptoms til January of this year, took persistance in telling my doctors there is something wrong with me. Tried to explain how I felt but they only thought it was hypertension and would increase my blood pressure meds. I didn't give up pressing for more testing till finally someone listened and ordered a Cardiac MRI and then came the diagnosis. Medications did not relieve me of my symptoms. Post surgery I thought I was on the mend but again medications keep getting adjusted, side effects are really keeping me in neutral. I'm going forward though and not giving up my dream to be someday looking back and take what I've experienced through all of this and help those who are just starting this journey. Wow, work on a farm, that's hard work. The best to you in your continuing recovery!!!