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Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Blood Cancers & Disorders | Last Active: Aug 12 7:56pm | Replies (44)
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@colleenyoung

Hi @lfevold, I'd like to add my welcome and also bring @beepoop @1nan @pro @lkzvlk @gingerw and @cctoo into this discussion. You can read more about their experiences with smoldering multiple myeloma in this discussion:
- Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis?: https://connect.mayoclinic.org/discussion/multiple-myeloma-i-have-smoldering-myeloma-does-anyone-have-this-diagnosis/

You may also be interested in this video with Mayo Clinic hematologist Dr. Kumar
- Multiple Myeloma: Smoldering, disease progression, and changes in approach: https://connect.mayoclinic.org/page/hematology/newsfeed-post/smoldering-myeloma/

@lfevold, for some people watch and wait can be disconcerting. I prefer to call it active surveillance. How do you feel about active surveillance as your primary treatment option?

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Replies to "Hi @lfevold, I'd like to add my welcome and also bring @beepoop @1nan @pro @lkzvlk @gingerw..."
lfevold | @lfevold | Oct 23, 2020

At this time I am fine with it. I am looking at things that could potentially help such as dietary changes or supplements.
Linda

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cathy56 | @cathy56 | Nov 30, 2023

I have been dx MGUS decade ago went to Mayo in FL in 2018. My 24 hr proteins were 1000 and slight beta globulin fraction but then R shoulder pain constant worse at nite so MRI shoulder indicated metastatic disease in 2018 and 2020 marrow showed C138 rare positive plasma cells then a bone biopsy suspected B cell lymphoma but no flow cytometry done as I awoke during bone biopsy finally PET scan indicated focal osseous bone lesion L lower limb dx C40.22 cancer Mets but I foolishly left hospice in April referred by Ocala, FL oncology to a radiation oncology for chemo or radiation therapy and have special PET scan in Ocala only to have wrong scan done they did only knees up with radioactive serum! This was done 2 months ago and now they want me to go to Mayo and how much can a patient take when my health and QOL has diminished with other symptoms that effect quality life and why can’t local oncologist contact Mayo resources for better outcomes for patients! It is discouraging.

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