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DiscussionNewly Diagnosed with Smoldering Multiple Myeloma: Watch & wait
Blood Cancers & Disorders | Last Active: Aug 12 7:56pm | Replies (44)Comment receiving replies
Replies to "Hi @lfevold, I'd like to add my welcome and also bring @beepoop @1nan @pro @lkzvlk @gingerw..."
I have been dx MGUS decade ago went to Mayo in FL in 2018. My 24 hr proteins were 1000 and slight beta globulin fraction but then R shoulder pain constant worse at nite so MRI shoulder indicated metastatic disease in 2018 and 2020 marrow showed C138 rare positive plasma cells then a bone biopsy suspected B cell lymphoma but no flow cytometry done as I awoke during bone biopsy finally PET scan indicated focal osseous bone lesion L lower limb dx C40.22 cancer Mets but I foolishly left hospice in April referred by Ocala, FL oncology to a radiation oncology for chemo or radiation therapy and have special PET scan in Ocala only to have wrong scan done they did only knees up with radioactive serum! This was done 2 months ago and now they want me to go to Mayo and how much can a patient take when my health and QOL has diminished with other symptoms that effect quality life and why can’t local oncologist contact Mayo resources for better outcomes for patients! It is discouraging.
At this time I am fine with it. I am looking at things that could potentially help such as dietary changes or supplements.
Linda