Now what! Neuropathy in feet and ankles.. Numbness in hands and arms

Hi Marriane! I love your Mayo name but just hate to think of your suffering behind that name! I will send you a private message soon, so as not to go off topic here.
In Christ's unfathomable love, Sunnyflower 🤗🌹

@lorettat

If you've asked your neurologist about it, did she/he tell you what it might be? I know that RLS presents not only in your legs. I asked my neurologist a few weeks ago if he had noticed the involuntary motions in my hands and arms, and just about every joint, and he told me it was RLS. The Clonazepam I take for anxiety has the added bonus of keeping me from kicking and punching in my sleep. Knowing that the movements are signs of RLS doesn't really change anything for me. The only movement that affects my day to day life is when my foot jerks when I'm driving. I think it's annoying to my wife, but it's not easy to control it. If I focus on it, I can be still for a few seconds.

It's probably something to discuss with a neurologist if you really want to know for sure. We don't do any diagnosing here. What we can give is support, and sharing our own experiences. I'd be interested to know if you get a diagnosis.

Jim

No I haven't I am still figuring with social security disability so that I can afford to see the proper doctors. I do know this because of my meth addiction I jerk when I am sleeping. It is irreversible nerve damage. But it's not the same as the restless body syndrome, or else.

RLS. And doctors don't like discussing anything that has to do with addiction. They all but run you out of they're office if you try to talk to them about it won't treat you.

@lorettat I started on Social Security disability when I was 55, and retired a few months later. I tried several times to overdose on pain meds, so my doctor told me that I really needed to retire before I was successful.

That was 15 years ago, and I'm still here, whether I like it or not.

I hadn't heard of restless body syndrome. I need to look at the article John wrote about. The movements go on all day but I notice them more when I'm lying in bed. All of a sudden my leg will jerk, sometimes quite violently. The other night I was lying on my side with my arm over my head and I punched myself in the face. Our bodies are amazing things, but sometimes they do some pretty weird stuff.

Have you stopped doing meth or any other street drugs? I know that I wonder how much my history of suicide attempts affects how the doctors see me, and if that's partly why my pcp is so set against giving me enough morphine to treat my pain. I know that a lot of it has to do with the war on drugs. He has to be very careful about prescribing controlled substances, because he could lose his license.

You said that you were trying to figure out how to work with disability insurance. Do you have any specific questions? Are you on Medicare? With Medicare and supplements I can pretty much go to any doctor who accepts Medicare, without a referral, though my doctors do sometimes refer me to another specialist. Do you know someone who might help you? If you have an insurance agent who works with Medicare, they can be a good resource. And this blog is another great resource.

Let us know if there's anything we can help you with.

Jim

I had a stimulator I plant 3 weeks ago, works great buttt the muscles on the left side of my spine hurt like heck, is this normal?

Hello @debbie2021, Welcome to Connect. I don't have any experience with stimulator implants but there are a lot of members here that may be able to provide some answers for you through their personal experience. Here are a couple of discussions you may want to read through to learn what has been shared and ask any questions you have.

-- Spinal Cord Stimulation: https://connect.mayoclinic.org/discussion/spinal-cord-stimulation-2/
-- Peripheral nerve stimulators: https://connect.mayoclinic.org/discussion/peripheral-nerve-stimulators/

Are you able to share more about your diagnosis and they type of stimulator implant you have? Also, have you discussed the new symptom of the muscles on the left side of your spine hurting?

Thank you

Actually The reason why it hurts, gratuity is in close range to my spine, they were cut, and sewn back together, I found heat is good!

I really can spell, I talked to my surgeon and it is due to the muscle layers being cut and stitched back together. All I know it hurts like heck. The stimulator is working great.