@patrick17

I suppose you've read my experience with scs. I have a Burst DR spinal cord stimulator, implanted in June of 2017. Surgery was no big deal. It was just frustrating that surgery was at the beginning of the very busiest time of year for yard work. The lawns were up to my knees when I was finally able to mow.

The stimulator has been doing nothing to treat my pain this past year. I found out that I had severe spinal stenosis, and had surgery for that 3 weeks ago. I was hoping that it would reduce the pain, having the nerves released from the grip of stenosis, but no such luck. I didn't have any adjustments to the scs since February, because I was waiting to see what effect stenosis surgery would have. The Abbott rep adjusted it Thursday, and the pain just got worse, so I've turned the setting down 3 notches in the past few days, so now the pain is pretty much what it's been all year. It's 6-7 during the day, and 8 or 9 when I lie down.

My neurologist agreed with me that a pain pump implant could be a reasonable next step. But then, the next day he learned that all of the doctors in my area who manage the medication in the pump have stopped doing it, and I would have to drive 160 miles to the nearest pain pump management doctor.

A dorsal root ganglion stimulator implant was in the discussion, but the surgeon who did my back surgery told me that it isn't designed for diffuse pain like mine. So, everything is up in the air now, including convincing my pcp to increase the dose of my morphine prescription back to what it was a while ago.

Isn't neuropathy fun?!! It's certainly a very unpredictable disease.

I've never heard of the Personage Turner Syndrome. I grew up in the parsonage and raised my kids in one. Probably not related to the syndrome. I deactivated my Facebook account more than a year ago and for the most part haven't missed it. I do miss the connection with my extended family and a few friends, and a couple of FB groups. The stress of the negativity on FB was having a bad effect on my mental health struggles, so I'm better off without it.

Before I wander any further astray, I'll just say goodnight.

Jim

Hey Patrick, Wow what kind words! Thank you! I hadn't heard of PTS so spent some time learning about it.

I have a very strange, painful shoulder problem but don't think it is PTS. I am very sorry you do. Amazing you got diagnosed!

Regarding the spinal cord stimulators, I have only recently started to pay just a little attention to what the group has been talking about; so many options! Sounds like there are surgically implanted ones and that others are wired to the body on the outside and worn sometimes inconviently on the clothing. Thankfully I don't have to have one.

I 'm really blessed to hear that you pray for me. What an honor! Thank you so much!! I talk to the Lord aka pray, throughout the day and night.

What keeps me going is my intimate relationship with God. He is ever-present in my life and I find such hope and assurance of things to come from His word.

I am deeply humbled and beyond grateful for the extra measure of faith He has allotted me. It is solely and only (is that redundant?) God's comfort and peace through Christ which surpasses human understanding that meets the need of the soul. He is my satiation. I can't wrap my mind around His unfathomable, sacrificial, boundless, unmerrited, vast, deep love. It is literally by the grace of God go I.

Patrick, I will be upholding you in prayer. I hope you find relief and the blessings in life which are so very hard to see when in intolerable pain. Warmest wishes, Sunnyflower
🙏😊