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Extreme light sensitivity. What can be done?

Eye Conditions | Last Active: Sep 24, 2021 | Replies (49)

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@rwinney

@jakedduck1 I was originally told photophobia was from my cornea disease and cataracts but, instead of the surgeries helping it as promised, surgeries made it worse. Then, my first neuro opthamologist blamed photophobia on scar tissue, from those very surgeries, and having blue eyes. 4 years and a neuropathy diagnosis later, a new neuro opthamologist agrees that neuropathy and dry eyes contribute. Hoping the Mayo Dr sheds more light. No pun intended. 😉

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Replies to "@jakedduck1 I was originally told photophobia was from my cornea disease and cataracts but, instead of..."

In adding to that...unfortunately, I believe photophobia is not fixable and basically is what it is. Sadly.

Hi Rachel and @jakedduck1, @sunny1971, @lioness , @artscaping, @jesfactsmon I've been photosensitive since a very young child. My grandfather would tell me to quit squinting or I would have wrinkles when I'm grown. Now as most of you know, I have a myriad of diseases including but not limited to: auto-immune mixed connective/collagen vascular Dz, Fibromyalgia, Neuropathy and Meibomian Gland Dysfunction/Dry Eyes. I asked my Neurologist if I could see a neuroopthalmologist and I think I can but she first wants me to assess my double vision I'm having throught each day and, the lines of text I'm seeing beneath a line of text although a bit lighter. Sometimes these Sxs last over an hour. She wants me to close one eye and then the other, to see if I still have those Sxs. I know from talking to a pharmacist and research I've done that Gabapentin can cause vision changes. I also have a constant pattern of off white/light gray in my vision field at all times. My visual acuity is spot on but these things I mentioned, as well as just some weirdness I can't articulate, are really disturbing my vision. Do any of you have these Sxs? And if so, and you've seen a neuroopthalmologist, what have they said the problem was? Thanks so much and I feel very badly about all the problems you guys are having. Many blessings, Sunnyflower