@jakedduck1 @sunny1971 Hey Jake! I love how when you step up to the plate, you step up BIG. Way to go! This is awesome information.

I'd like to conclude the importance of balance when it comes to light exposure verses deprivation. Of course if extreme light sensity comes after eye surgery there is bound to be the approach of needing complete blackness. I know it too well and those times were brutal. However, in time, I have found that the remnants of photophobia that I have been left with from surgeries, neuropathy, dry eye and migraines, need balance of light. Acclimating slowly to a drastic light change has been very important for me. You are right when you say avoiding light can become acute. I feel bad for anyone experiencing these challenges, like @sunny1971's husband. It is taxing.

Some things I have done to be more comfortable are lowering the brightness on all my TVs and devices. I sit at an angle while watching TV, never directly in front. Even with that, some nights, it's not enough and off to bed I go. I pretty much live in a baseball hat as blocking the light from above is helpful. Visors down in vehicles (I wish there were side visors in addition to front visors). When it gets too bad, I sit in the back seat where I'm better protected from direct light. I have multiple sunglasses and now am trying FL-41 lenses.

I will be leaving Sunday to attend Mayo's PRC and while there my neuro opthamologist has arranged for me to be seen by a Mayo cornea specialist. I'm super excited for this and if I learn anything new about dry eye or photophobia, I will definitely share with all of you. My heart goes out to all who suffer.

Rachel