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@jabaird2002

My name is Jennifer and I have just joined the Mayo Connect. I was first Diagnosed with gastroparesis in 2/19. Before that I had/have the following: SOUND SENSITIVITY, CANT TALK/CANT TALK LOUD, CANT SWALLOW WELL, HANDS AND FEET STAY COLD, TIGHTNESS IN RIGHT SIDE OF NECK/FACE, ARNOLD CHIARIA MALFORMATION, CONSTIPATION, SEVERE WEIGHT LOSS (over 30 lbs n a yr), BAIN PAIN (L4-S1), ARTHRITIS, SI DYSFUNCTION, RT ARM SURGERY AND PAIN AND NUMBNESS, SORES IN MOUTH (can’t think of word), DENTAL ISSUES. I could go on. I’ve had every blood test my PCP can think of. Been to multiple drs. Most recent news is a feeding tube. I know my body well enough to know that the drs are missing something. Not much support from family. Single mom with a 16 yr old daughter. Still barely holding down a job (been warned that my production is low and next step is written warning then termination). Clueless as to what to do or where to go😢

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Replies to "My name is Jennifer and I have just joined the Mayo Connect. I was first Diagnosed..."

Hi @jabaird2002,
I hear you. You are at the end of your rope. I recommend that you follow the Digestive Health group here: https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/

In particular this discussion may be relevant for you:
- Extreme weight loss, cannot eat. No diagnosis yet.: https://connect.mayoclinic.org/discussion/extreme-weight-loss/
Continue to ask questions and advocate for your care.

Jennifer - I am sorry to hear of your health struggles. One thing you may want to do to protect and maintain your job is consult with a lawyer in employment and related law. As an example, I’m thinking specifically of the FMLA (Family and Medical Leave Act). If you cannot afford a lawyer, you may want to check your local Legal Aid office. Good luck!