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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Mar 25 2:04am | Replies (172)
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@mgreen616

Hi Scott,

Thanks so much for the reply. My kids are handling things very well but I always wonder what they are thinking and what their concerns are. One minute they will be scared and asking questions and the next they will be acting silly and want to play outside - they are keeping me sane and positive. Thank you for the website - I will check it out with hopes that he gets accepted into a clinical trial!

Maureen

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Replies to "Hi Scott, Thanks so much for the reply. My kids are handling things very well but..."
Scott, Volunteer Mentor | @IndianaScott | Jan 21, 2021

You are more than welcome, @mgreen616 Nice to read you children are nice and resilient as they navigate this journey with you. Kids are wonderfully amazing to me! As you move forward I'd suggest, if you haven't seen it yet, consider visiting the Caregivers Group here on Mayo Connect. It is at
https://connect.mayoclinic.org/group/caregivers/
The caregiving journey is as unique to each caregiver as is their loved one's disease, but there are many hints, tips, and suggestions within the posts there that have helped many. It's also a safe place to let loose our rants from time to time!

A lot of folks gave me lots of advice during my years as a caregiver, but one of the best, which helped me on many days, was to remember this "Courage does not always roar. Sometimes courage is the quiet voice at the end of the day whispering 'I'll try again tomorrow.'

I'll leave this post with this personal thought: Superheroes only exist in the comics. Superman and Wonder Woman weren't caregivers!

Strength, courage, and peace

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