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angiev18 (@angiev18)

Post septum myectomy

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 13, 2021 | Replies (23)

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@bbonchek

My medications changed dramatically after my surgery since the meds before were trying to different things. Unfortunately due to Covid and I live in Southern Indiana in a small town, I was not able to do my follow up at Cleveland Clinic in a timely way. My local doctor had me way over medicated and did not listen to me properly. At that time I was light headed, had head aches, dizzy, and and no energy. I finally changed to a doctor in Indianapolis which is only 2 hours away and she is a specialist in my area of heart issues. She got me set on a better medication path in July and I am much better. The symptoms went away after the medication changes. I was also not able to do to cardiac rehab due to both Covid and medicare would not cover it. My physical therapist gave me the go ahead to swim but that was not until 4 months post op. But I can tell you this, 7 months out from surgery I feel great and you will too. It just takes time and perseverance. I see my doctor in Indianapolis in 2 weeks so will see what she says. I am so grateful for the wonderful care at both Mayo and Cleveland Clinic. FYI I went to Cleveland because we had family and friends there who could help out before and after surgery. They are both amazing places for heart issues.

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Replies to "My medications changed dramatically after my surgery since the meds before were trying to different things...."

Thanks for your response and for the encouraging words. I have not started Rehab yet at 9 weeks out. I had ICD implanted on left side 5 days post op of septum and apical myectomy I have restrictions on left arm for 3 more weeks then will begin Cardiac Rehab. So you knew you were not on the right dosages, mddications because of your symptoms and found a different doctor in Indianapolis? I'm also dealing with the same situation right now. I have an appt with a Heart Failure doctor in 2 weeks. Before having the surgery I thought about how it would be having the doctors who performed the surgery 6 hours away and then transitioning to a local Cardiologist. It would be interesting to hear advice on finding the right Cardiologist locally after having heart surgery at Mayo's. Good luck to you. 7 months out, can't wait!!

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