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angiev18 (@angiev18)

Post septum myectomy

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 13 9:06am | Replies (23)

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@bbonchek

For a few months post surgery I was just very tired and took naps every day. The pain subsided within 2 months and Tylenol was a big help. When I took walks I had to take lots of breaks and would get very winded. I would tell people I felt like I was walking through molasses. This summer I started swimming in our lake which was very beneficial. I did wear a swim belt while I swam. My physical therapist recommended the back stroke which helps to strengthen and stretch the chest area. Recovering from the trauma of the surgery is huge, But, my symptoms were very different than before the surgery when I had lots of dizziness, head aches, loss of stamina, hard to breathe, etc. Now 6 months out I feel great which I feel you will too with time.
It is also a process to figure out the medication routine which has been altered a few times to my benefit. I also do breathing exercises regularly which really helps to control blood pressure and help the lungs to stay strong. I also got an Apple Watch to monitor my heart. My surgeon recommended it. I can take EKG's to monitor for AFib and keep track of my heart beat especially while doing exercise.
Good luck. I am happy to share more. You will be fine.

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Replies to "For a few months post surgery I was just very tired and took naps every day...."

Thanks for your response. It helps to hear from others of what their experience was like. Im 9 weeks post surgery. I was told for perhaps 6 months your heart is angry and starts to settle down. What were you experiencing symptom wise that medication changes were made? Are you talking less medications 6 months after surgery or more? Higher dosages or lower dosages of meds 6 months out? Hope you continue to improve and swimming helps get you stronger and stronger. Did you go to Cardiac Rehab therapy before you stage using your arms to swim? Best of luck to you!!

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