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angiev18 (@angiev18)

Post septum myectomy

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 13 9:06am | Replies (23)

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For four weeks after my surgery I was relieved of the dizziness, wobbly legs, tiredness on exertion, head rushes. I was dealing with
the sternum pain and had some wound issues but none of the HOCM symptoms. Now the pain is getting better each day but some of the symptoms are coming back. I was told for about 6 months my heart will have to adjust and perhaps medications also will need adjusted. Im just trying to find out from others who have been there did symptoms come and go post surgery before they started feeling better.

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Replies to "For four weeks after my surgery I was relieved of the dizziness, wobbly legs, tiredness on..."

Hi angiev18, nine weeks is only relative, as each person heals from this at their own pace. I was right there with you at Mayo in July. So I can compare my notes with yours. I had a septal myectomy and a myectomy of the muscles around the upper portion of the atrium. I notice that this recovery seems to go in phases. Progress made, then it pauses. Then progress again. I was really active and healthy before the surgery so maybe that has helped me recover the way I am. I had a few occasions when I had chest pain and shortness of breath while I was walking. It was only a few weeks ago, and this week no chest pain. Just a little short of breath. The pain I have experienced is probably what everyone who has had open heart surgery experiences. You can't cut thru the sternum, open the aorta, cut out a chunk of heart tissue while your heart is stopped and not have some residuals! For my, the pain between my shoulders is annoying. It comes and goes. Somedays it's nearly non-existent and others I need an Advil. And I was totally not expecting my collar bones to be involved in this process. But there they are…making it difficult to pick things up using opposing force. I had no wound problems, but it took at least 6 weeks for the chest tube sites to heal. It feels 'tight' in my chest. Like I can't swing my arms around. It's getting better though. I also was told that this can take at least 6 months to settle down. The healing of the inside of the heart takes time. I am also 9 weeks out and each day is getting better. I look at where I was when I first got home and where I am today and that's my motivation! I move around way easier Sept. 25 than August 25. And way way better than July 25. Don't be hard on yourself. Or compare yourself to others recoveries. You are unique and you are healing that way you heal. I wish you the best going further down the road to recovery! You are a survivor! You survived the most difficult surgery there is! You're already a champion!

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