Fibromyalgia or Neuropathy: Pain all over not just feet and legs?

Hi @maryflorida, I added to your title so that other members who have experienced your symptoms can join the discussion and share their experiences. I know that Fibromyalgia is difficult to diagnose so that could certainly be a possibility. Here is a Mayo Clinic video that you may find helpful.
https://www.youtube.com/watch?v=erTtmDNUpUM

Thank you, John!

watching it now, Thank you!

Hi Maryflorida,
I was diagnosed with Fibromyalgia before I ever heard the word, in the late 1980's. Now knowing what it is, I had it a long time before I was Dx'd.
I also have been Dx'd with Allodynia as well which some think is the same thing as Fibro but it's not.
I knew that my insane pain response to anything invasive, whether a microscopic virus, bacteria or foreign body, was abnormal. I also can't be touched in certain ways such as my skin can't be brushed with a hand but it can lay on my skin and even gently squeeze it.
There are places I can't be touched at all such as my upper back and spine area.
The all over flu-like tenderness, aching, fatigue, and trouble concentrating, focusing, decision-making, etc., is textbook fibro.
Then I got the neuropathy and burn and sting over most of my body. It's such a brutal pain! It feels as if I am missing the protective top layer of skin in places. Ouch!
I am happy to do my best to answer any questions you may have about fibro or anything else.
I wish you all the best and a zillion blessings, Sunnyflower 😊

How do you handle the pain?

@busterbrown I also have fibro, neuropathy and 2back fractures since the 90,s fibro one class on it said doing isometric exercises helps which I still do but other remedies I use aren't prescription meds for all gave me side effects One important thing is to not overdue and say no when you know it's to much .I use heat a hot shower ,really helps different creams CBD cream ,capsule Topricin for fibro and neuropathy Like Sunny flower there are points I scream when touched rest just a few find what gives you the relief

Thanks. I just ordered Topricin from a Walmart. I have been bed-bound for several weeks

@busterbrown Good I'm sure you,ll like it I use it morning and night

The pain and tingling sensations are is so difficult to describe isn't it?! One day I have tingling in my face and ear, the next day it goes away. I will have tingling in my feet one day and then pain the next day. I am still waiting for my diagnosis and wishing you the best and get answers as well.

Hello kyc117, I too have had such bizzare sensations going on all over my body in addition to the all over horrible stinging, burning and numbness. This is the stranges disease ever! Hope your doctor is able to give you a solid diagnosis! Warmest regards, Sunnyflower 🙂