Thank you so much for your reply. I’m sorry that you had to go through so much before your diagnosis. I wish we could go to Florida, but right now we have an upcoming appointment in Minnesota which I think will be a good start for us. My daughter also does have problems with digestion although I don’t really know the connection yet I should read more about that part. I suppose they just treated as they would any constipation? I can relate to your Frustration with the doctors prior to diagnosis. Our children’s doctor simply looked at us and told us that he she thought that my daughter had a low pain threshold. I immediately stopped going to her. I began taking her to children’s hospital and it was only when I was seeing a physical therapist myself and was asking her about it that she brought up the EDS diagnosis. Honestly I’m not even sure children’s would have caught it because they haven’t so far and we’re sending us at that point to the pain clinic to be treated for pain. I wish more doctors were educated about this condition.