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Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Infectious Diseases | Last Active: 1 day ago | Replies (35)
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@colleenyoung

Specialists involved in the care of someone with CAEBV may include:
- Infectious disease specialist
- Immunologist
- Hematologist

Tagging fellow members, like @nataliem @mblack @jbri @dquick @michellebelle @kkathysan @lisajensen and others for their recommendations of centers that treat EBV.

Grasshopper, what specialists have you seen?

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Replies to "Specialists involved in the care of someone with CAEBV may include: - Infectious disease specialist -..."
grasshopper123 | @grasshopper123 | Aug 25, 2020

I haven’t seen any...only naturopathic doctors.

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bronz | @bronz | Aug 11, 2022

I am looking for a doctor who specializes in CAEBV and takes insurance. I am currently seeing an Integrative Medicine doc, and have had some improvement - but he does not take insurance and I am running out of funds. So it is go broke or let nature take its course. Neither choice is acceptable.

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fatigue001 | @fatigue001 | Aug 12 10:28pm

Just to encourage you some drs say you haveCAEBV when your Epstein Barr has been reactivated and your exhausted for a year and keep testing positive for it. But I don’t think that is the same as CAEBV. That is a death sentence and they call it CAEBV when they shouldn’t and they get a lot of people scared to death telling them that!

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