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azurite (@azurite)

Non-Anxiety "Panic Attacks" with POTS?

Heart Rhythm Conditions | Last Active: Aug 23, 2020 | Replies (10)

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@colleenyoung

Hi @azurite, I'd like to add my welcome. I think @julianned @c130 @lpate and @jackiepon will also be interested in this discussion and may have experiences to share with you. You can also read more about their stories with POTS in these discussions:
– POTS – postural orthostatic tachycardia syndrome https://connect.mayoclinic.org/discussion/pots-postural-orthostatic-tachycardia-syndrome/
– I have symptoms similar to POTS but was told it isn’t POTS https://connect.mayoclinic.org/discussion/i-have-symptoms-similar-to-pots-but-was-told-it-isnt-pots/

Azurite, I'm glad that you're getting better at dealing with the lightheadedness during the day. Can you share what has helped you? What strategies have you tried to calm you to be able to sleep?

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Replies to "Hi @azurite, I'd like to add my welcome. I think @julianned @c130 @lpate and @jackiepon will..."

I’ve found that my lightheadedness is worse when I am sitting fully upright, feet to the floor, in a chair for too long. I try to have more of a graduated posture with my legs up a bit more. I live in Phoenix and the summer heat has been a huge trigger, so I now know I can’t tolerate anything outside. It’s a 6 month-year wait for me to be seen by the POTS specialist here at Mayo Phoenix, so on my own I’ve been trying to increase salt, increase fluids (w/ Nuun hydration), do stretches, but every time I feel like I’m improving, I have huge setbacks with symptoms. This week I’ve had episodes of chest tightness and difficulty breathing, in addition to more episodes of weird heart palpitations.
My “attacks” at night typically happen an hour or two after I first fall asleep, and sometimes I have mini-episodes as I’m trying to fall asleep. It’s like my body and brain are broken, almost like it’s freaking out about going from a day of activity to now fully lying down at rest. Talking with my psychologist has been helpful in reducing anxiety about bedtime, trying to create different good associations with the space. It’s helpful knowing I have Xanax on hand if needed, but I find an “attack” can come on regardless of how calm I am at bedtime, regardless of how “good” the prior day was.