@devonsanna Welcome to Mayo Connect. Here you will find a community of fellow patients, caregivers, and family members who share their personal experiences, like you have. We support each other, but cannot and will not do medical advice or give diagnoses.

It has to be frustrating to have people doubting you, especially when you are in so much pain! Are you near one of the campuses of Mayo Clinic that you could go there, or a large teaching hospital? Having an autoimmune condition or three, it is often a "guessing game", as your body reacts differently at different times. I know that is how it is for me. I wish I had more answers for you, but I hope that others will step in and give their input.

Please come back and let us know how things are going for you.
Ginger