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DiscussionAutoimmune something: Struck with extreme fatigue
Autoimmune Diseases | Last Active: Aug 26, 2020 | Replies (37)Comment receiving replies
Replies to "This is exactly how it started for me. I’ve been told almost everything under the sun...."
Please do try to get to Mayo! I think you would be assigned a team of Drs to work with you. Do you have health insurance? I think Mayo is not pricier than other places and it is the best.
It took over 4 yrs to get a diagnosis but now the fight for proper treatment. The gabapentin helps with the night pain so I can sleep but with nothing during the day the struggle is real. I have been told that I have less than 5 years and less if progression keeps going as it has been. I do not put a grain of salt on their time lines as this is not the first time I was told the end was near and bypassed it totally. I am just tired and frustrated.
One treatment for rheumatoid arthritis is weekly shots of methotrexate. Which did help but I also have psoriatic arthritis. BUT: The methotrexate will damage your kidneys as is what happened to mine. I stopped the methotrexate but am now consumed with horrible pain throughout the body and the psoriatic arthritis has my finger nails falling off (agony) and the rest of my body responding to pain as well. Damned if you do and damned if you don't. It is easy to give up now but what keeps me going is my cat and dog. They are old as I am (83) they are 14 years of age. They need me to help them with their passing then my turn will come. But, I still smile (when I can). As hard as it is. Good luck to all of us. Peach