Replies to @valb68, Don't be discouraged and keep taking it one day at a time. My first time…

Discussion

Polymyalgia Rheumatica (PMR) | Last Active: Aug 13, 2020 | Replies (9)

Comment receiving replies

@johnbishop

@valb68, Don't be discouraged and keep taking it one day at a time. My first time with PMR it took me 3-1/2 years to taper off of prednisone and be relatively pain free. Have you tried tapering down 1/2 mg at a time and go for a week at that dose and if you can tolerate the pain try another 1/2 mg reduction. If you have the 1 mg tablets, they are easy to split.

Jump to this post

Replies to "@valb68, Don't be discouraged and keep taking it one day at a time. My first time..."

valb68 | @valb68 | Aug 13, 2020

Thank you for your reply. Yes, I have tried tapering 1/2 mg. at a time (several times). I have spinal stenosis, and when I have a flare I can barely stand up, let alone walk. It seems like my whole body gets inflamed at once. What have you tried in addition to prednisone? Because of my stupid kidneys, I can only take Tylenol for pain (better than nothing!). Have you taken a biologic?

VIEW AND REPLY