Hi @10987654321, as a last resort, it is not uncommon for people to post to online communities, like Mayo Clinic Connect. Certainly members here cannot provide a diagnosis, but perhaps share similar stories to help you research your issues and work with your doctors to find cause and cure. Here are a few discussions that you may wish to read to begin your investigation.

- Mysterious shortness of breath https://connect.mayoclinic.org/discussion/mysterious-shortness-of-breath/
- My Mysterious Illness https://connect.mayoclinic.org/discussion/my-mysterious-illness/
- Icy feet and ankles with Small Fiber Neuropathy....anyone? https://connect.mayoclinic.org/discussion/icy-feet-and-ankles-with-small-fiber-neuropathy-anyone/
- 2 years sick, nauseous and dizzy, no answer, please help. https://connect.mayoclinic.org/discussion/2-years-sick-no-answer-please-help/
- 1 million dollar workup and still no answer, 8 months of suffering https://connect.mayoclinic.org/discussion/1-million-dollar-workup-and-still-no-answer-8-months-of-suffering/

What specialists have you seen? What tests have been performed?