Hello Mel. So glad you are comfortable reaching out early in this medical journey. I am a long time survivor of another blood cancer, Multiple Myeloma. That suggests more medical appointments than I could ever guess. Colleen started you on a very important first step, and that is: arm yourself with information. That includes reading, listening to any available presentation, and talking with those with personal experience in any related form. My second suggestion is to always, always have someone with you at appointments who is equipped with a method to take notes and help you cover all those planned questions. I always asked the person with me, in my case my husband and a few times a daughter, to please ask their own questions during the appointment. At the end I always ask them if they have any last minute thoughts or questions. Many times my husband heard something I missed and vice versa. Is there any part of this that I can further clarify?