Burning Hand Pain

Posted by atchastain @atchastain, Aug 7, 2020

I have Cervical radiculopathy and myelopathy. I had surgery 2 years ago, but still have burning pain and sensitivity in my hand. I'm on 3400mg Gabapentin, 10 mg Buprenorphine pain patch and a compound topical. I have an appt next week with my Dr to access my meds. What has everyone had luck with to relieve the burning?

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@artscaping

@jesfactsmon, oh dear....you indicate that your wife is smoking marijuana. And you live in the wrong state. Do you have a vacation planned in Colorado? Florida probably isn’t a good place with the outbreak. If you can find a source, you can try tinctures......hold the dropper dosage under your tongue for a minute so that the liquid can be absorbed through the membrane under your tongue and doesn’t process through your digestive system. I can’t imagine smoking flower.

I started with a vape but stopped when I could feel the discomfort in my throat. I also use a 1:3 CBD/THC topical for ouchy tingly hands that is extremely helpful and unusual.because of the ratio relationship. CBD needs a bit of THC to activate it. Took me a while to even try it. Now it is always with me and extremely soothing. You can read about Releaf Balm on the Papa and Barkley site.

I change the ratio of the tincture throughout the day. When I get up in the am......it is a 1:1 CBD/THC to get me going. Afternoon is a 1:30 CBD/THC with less in the dropper. Finally bedtime is my calming 2:1 CBD/ THC and the topical. You will notice the 1:30 ratio....that is a really elevated dosage for the tough part of the day. I started with 1/4 of a dropper for 4 hrs of peace. Then increased the dosage not the frequency.

Hope this is informative. I have been using medical cannabis for 5 years. You may want to do your homework for this one so you are ready for access. Also watch the industry developments and hope for more $$$$ for research. Just amazing. All of my clinicians are in the know and very supportive.

My best back at you.......and a big wish for a pain free day for your wife.
Chris

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Thanks Chris, for the info and the well wishes. I know Tennessee is way behind the curve on this. There are plenty of people fighting to get it passed here. The governor will not sign it until the Federal laws make it legal in the entire U.S. Meanwhile, we obtained our little 2 oz. stockpile legally 6 years ago when we lived in California. And for Linda, a dose is a puff. That's it. A puff! She puts a little amount in a pipe, and she's good for several separate pain episodes. So what we have is going to last a long time at that rate. When it becomes legal she will be glad to stop having to smoke, but she does not feel it's too abrasive on her throat at this point. Thank-you for the info though, good to know about the best way to take it. Best to you, Hank

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@artscaping

Good evening @atchastain, welcome to our neuropathy group. Is the meeting to assess your medications with a neurologist? What treatments other than these medications have you tried? I have not been diagnosed with anything similar and on top of that, I just don't know what burning means. How would you describe it? Is it tingling sensations that are so intense that you feel pain all over your hands? If you hold the fingers in your hand tightly, does the "burning" go away? Does heat or cold make a difference?

You may want to make a list for the doctor of your symptoms and what you are doing to relieve them at this point. It would be helpful for your discussion to be able to take a written document with you that includes your symptoms, diagnosis, treatments, medications, and side effects if any. If you have a portal available at your clinic or hospital, you can just upload your information onto your record before your appointment.

One of the things I have noticed over the years is that even with medical cannabis our body becomes a bit too comfortable with a dosage and we have to assess and make choices all over again either to add more at each dose or more doses in a day or a new medication. Don't forget to take time in letting go of or reducing something like Gabapentin. I think you are already pretty maxed out with Gabapentin. 3600 mg is the highest dosage possible. I take 900 mg every night reduced from 1200 so that I could replace it with a dropper of medical cannabis.

Are you sleeping well? I guess I would question why you are taking so much gabapentin as well as one of the strongest pain opioid medication in a patch.... Buprenorphine. Do you put the patch over your hands? On top of the topical compound?

Well....that is certainly a lot of questions. However, on Connect we like to be thorough so we don't miss a significant issue. Without being pushy.....would you please let us know the outcome of your meeting with your clinician. I am putting you on my follow up list. Best wishes for a successful appointment.

Be safe and protected from inner and outer harm.
Chris

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@ Chris trout Wanted to let every one know I have a sinus infection, so won't be able to message anyone, unless I start to feel better.
Love and prayers to all lilypaws

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@lilypaws

@ Chris trout Wanted to let every one know I have a sinus infection, so won't be able to message anyone, unless I start to feel better.
Love and prayers to all lilypaws

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Hi @lilypaws, sorry to hear you have a sinus infection. My wife gets those and they are awful. Last year she got rid of one when an ENT Dr. prescribed a steroid for her. That was the good news. The bad news was her neuropathy got much worse right after doing that steroid. One thing she did do which helped her a lot was to start sleeping on a wedge, a slightly inclined cushion that we bought at Bed Bath and Beyond. It rises a total of about 6 inches from front to back, so her head is elevated. She stopped having nearly as bad of sinus symptoms and she also got totally rid of her sleep apnea which she had had for about 30 years at least. Maybe this might be something for you to try. My best to you, hope you feel better, Hank

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@lilypaws

@ Chris trout Wanted to let every one know I have a sinus infection, so won't be able to message anyone, unless I start to feel better.
Love and prayers to all lilypaws

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@lilypaws Sinus infections are miserable. I hope it clears up soon.

Jim

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@jesfactsmon

Hi @lilypaws, sorry to hear you have a sinus infection. My wife gets those and they are awful. Last year she got rid of one when an ENT Dr. prescribed a steroid for her. That was the good news. The bad news was her neuropathy got much worse right after doing that steroid. One thing she did do which helped her a lot was to start sleeping on a wedge, a slightly inclined cushion that we bought at Bed Bath and Beyond. It rises a total of about 6 inches from front to back, so her head is elevated. She stopped having nearly as bad of sinus symptoms and she also got totally rid of her sleep apnea which she had had for about 30 years at least. Maybe this might be something for you to try. My best to you, hope you feel better, Hank

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@jestfactsmon @lilypaws Guys, I have to tell you about a miracle product for sinus headaches. Take this when a sinus headache starts, and continue about a week, the headache will vanish within the day, or two, when you take it. The product is called "Seasonal Allergy." ( It was formerly called ALJ.) It is sold by the Natures Sunshine Company, and you will find it easily on line. It is herbal, consisting of things like horseradish root, fennel, and a bunch of other things. I also use it for post nasal drip, as my sinus goo drips down my throat, and sometimes, this causes me to gasp and have trouble breathing when I sleep. This product will make that vanish as well, but takes a few weeks. I have used this product for 20 years, and no longer need steroid pills, steroid nasal sprays, nothing. I swear by this stuff, and have told many people about it. I have even told a friend who got sinus surgery, and still had sinus problems. After using this product, his sinus problems have vanished. It is about twenty bucks a bottle. Money well spent. Lori Renee

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@sunnyflower

Thanks! Do you have a brand name you have received help from their product? Warm regards, Sunny

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It is just called Wisemen Healing Balm. That is the name. from Amazon. Lori

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@jesfactsmon

@artscaping Chris, I agree with you about marijuana. Linda, my wife, usually tries to limit herself to using it twice per week. She knows from experience that if she uses it too often it will reduce it' effectiveness. Lately her pain has just been so bad and relentless she has used it several times within a week. The other day she said she had smoked two different times (medical MJ is illegal in Tennessee) in one evening after having already used it two or three times very recently. She said it did nothing and looked quite disconsolate. I feel so badly and so helpless when she has bouts lie this. Anyway, just wanted to tell you that I agree with overuse of MJ which seems to be true with many other things as well. Best, Hank

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@jestfactsmon Hank, I hate to hear how bad Linda is doing. She is so sensitive to marijuana, that she may benefit from CBD with the .03% or less, THC. I buy a really potent CBD oil with just a touch of THC, and the stuff does help with pain. I buy a high milligram bottle, and I swear, a whole dropper makes me feel high. I am very sensitive to marijuana, and feel high very easily from it. It is actually why I am not crazy about it, as I don't like being high. If you want to know any more about what I buy, let me know, and I will private message you. The stuff does work for pain. I feel terrible that Linda is doing so poorly. Neuropathy is a horror show. Lori Renee

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@lorirenee1

@jestfactsmon Hank, I hate to hear how bad Linda is doing. She is so sensitive to marijuana, that she may benefit from CBD with the .03% or less, THC. I buy a really potent CBD oil with just a touch of THC, and the stuff does help with pain. I buy a high milligram bottle, and I swear, a whole dropper makes me feel high. I am very sensitive to marijuana, and feel high very easily from it. It is actually why I am not crazy about it, as I don't like being high. If you want to know any more about what I buy, let me know, and I will private message you. The stuff does work for pain. I feel terrible that Linda is doing so poorly. Neuropathy is a horror show. Lori Renee

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Thanks Loi. Linda has tried a couple different cbd oils in the past and had no benefit from it. I doubt she will want to try it again. Usually when she has given something a chance and it hasn't worked it's real tough to get her to go back to it. We also do not have access to legal THC. But I do, as always, appreciate the suggestion as well as the sentiments. You're the best! 😊 -Hank

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@artscaping

Good evening @atchastain, welcome to our neuropathy group. Is the meeting to assess your medications with a neurologist? What treatments other than these medications have you tried? I have not been diagnosed with anything similar and on top of that, I just don't know what burning means. How would you describe it? Is it tingling sensations that are so intense that you feel pain all over your hands? If you hold the fingers in your hand tightly, does the "burning" go away? Does heat or cold make a difference?

You may want to make a list for the doctor of your symptoms and what you are doing to relieve them at this point. It would be helpful for your discussion to be able to take a written document with you that includes your symptoms, diagnosis, treatments, medications, and side effects if any. If you have a portal available at your clinic or hospital, you can just upload your information onto your record before your appointment.

One of the things I have noticed over the years is that even with medical cannabis our body becomes a bit too comfortable with a dosage and we have to assess and make choices all over again either to add more at each dose or more doses in a day or a new medication. Don't forget to take time in letting go of or reducing something like Gabapentin. I think you are already pretty maxed out with Gabapentin. 3600 mg is the highest dosage possible. I take 900 mg every night reduced from 1200 so that I could replace it with a dropper of medical cannabis.

Are you sleeping well? I guess I would question why you are taking so much gabapentin as well as one of the strongest pain opioid medication in a patch.... Buprenorphine. Do you put the patch over your hands? On top of the topical compound?

Well....that is certainly a lot of questions. However, on Connect we like to be thorough so we don't miss a significant issue. Without being pushy.....would you please let us know the outcome of your meeting with your clinician. I am putting you on my follow up list. Best wishes for a successful appointment.

Be safe and protected from inner and outer harm.
Chris

Jump to this post

Hello, I hope this helps, but I feel like I am being burned alive. I described it as stinging. And or, like a brutal sunburn that has burned off the top layer of my skin. At the same time I am numb all over and can be in a pool and not feel that I am wet. I can feel temperature and pressure but not wetness. I hope those descriptions help. There are mild pins and needles but mostly mine is stinging and burning. My feet and hands are like ice and knees burn especially badly so heat on hands and feet and Ice gels on knees. Hope that helps, Sunny flower

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@sunnyflower

Hello, I hope this helps, but I feel like I am being burned alive. I described it as stinging. And or, like a brutal sunburn that has burned off the top layer of my skin. At the same time I am numb all over and can be in a pool and not feel that I am wet. I can feel temperature and pressure but not wetness. I hope those descriptions help. There are mild pins and needles but mostly mine is stinging and burning. My feet and hands are like ice and knees burn especially badly so heat on hands and feet and Ice gels on knees. Hope that helps, Sunny flower

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Oh @sunnyflower you make my heart break. I am so so sorry to hear what you are going through.. Can I ask, are you able to find any relief from your pain, does anything help you? Are you aware of anything that you would like to try but can't or haven't yet? Do you have someone with you as you are going through this hellish life? Please tell me that you are not alone in your agony, I can not bear to think you are facing this alone. I have so much compassion for you, as little as that helps you, I know. With sorrow for your condition, Hank

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