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Nerve biopsy test: Is it done by a neurologist or rheumatologist?
What kind of doctor do I see for the nerve biopsy test? My PCP sent me to a rheumatologist for a diagnosis. She feels it is fibromyalgia but prior doctor in Wash. state said it is neuropathy. She won't arrange for the biopsy. Which kind of doctor can finally give me a diagnosis or is she right? All she is offering is amitriptyline for pain. I do take norco too, but my PCP would like me to get off that. I need advice.
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I was accepted with Blue Cross out of network coverage through Medicare.
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1 ReactionIf you live near Mayo, considering you're there with your husband, then perhaps it's in your network already. Good luck when calling your insurance company. I hope you already have the coverage and dont need to wait for open enrollment.
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1 ReactionHi Mary @maryflorida - Mayo does have a page on their website that gives some information on billing and insurance that might be helpful: https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicare/more-on-medicare
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1 ReactionThank you. I will check it out right now.
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1 ReactionHello Rachel, please forgive me for taking so long to find this report! And, I have no idea how I wound up in the private message section as you said I did before. I believe part of the problem is that I use my phone mostly and I don't think it's as capable as my laptop or rather tablet so I will try to keep that in mind. Please forgive me I I'm so limited in the times I feel good enough to talk with you and other people. What up thoughtful, Brave thing you did to share your pathology report. I hope to learn a lot from it and what the results mean. I just feel like I want to go in at UK today when I approach my neurologist. Thank you again it means so much that you took the time to share that with me and us. I hope you are feeling tolerable of your pain more than not tolerable. That's how I judge it I'm intolerable and or fighting for my sanity or the Gabapentin is helping to dull the pain enough that it's tolerable. I know you get it and everyone on this blog gets it too. It's unrelenting. Honestly and truly I cannot remember what it feels like to not hurt so bad in so many ways all over my entire body. Take good care of yourself and I wish you all the best! Warmest regards, Sunny flower
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4 ReactionsOops, I did not edit enough I guess. What I meant to say is that I want to go to my neurologist with some education behind me about these biopsies. Sorry! I'm really uniquely talented that way LOL!
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3 ReactionsHi @sunnyflower just a quick moment to chime in on this post to tell you that we here DO "get it". My wife does not use computers, smart phones or pretty much ANY technology, as her brain is wired in such a way as it's difficult for her to do (and even abhorrent). So I keep up with everything here as much as I can and I choose posts and conversations to read to her. You are one person, among several here (or many here actually) who are so inspiring to hear speak about their neuropathy and the suffering that comes of it (and the ways they try to transcend it) that I am frequently compelled to share their stories with her. I find many moments of inspiration amidst the struggles here. I just love it when someone begins to post regularly here as it is so helpful to so many others. I believe the point of being here is to be able to take away tidbits of information and encouragement from others, but I believe it is also a place to come to share with and give what we can to others. It's a blessing that you are here, telling us what you are going though and listening to others do the same.
I am not sure what exactly I am trying to say with this post except I am thankful for this place (Connect) where we can try to give and receive help; life has little hidden gems for us as we travel along it's path, and this forum has certainly been one for my wife and I. Thanks for sharing your stories and experiences, Sunnyflower. And more broadly, thank-you to the others here who are doing the same, it is greatly appreciated! Best, Hank
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4 ReactionsThank you so much.
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1 Reaction@sunnyflower what dosage of gabapentin are you on that is helping, I am working up and I still have the burning shooting pains all over my body, not just my legs and feet.