Hi @lel, welcome to Mayo Clinic Connect. I'd like to introduce you to @bradmm who is also a caregiver. His wife has AML and just recently had a bone marrow transplant. You can read more about their story here:
- Anyone had successful stem cell transplant for AML? https://connect.mayoclinic.org/discussion/would-like-a-stem-cell-transplant-support-thread/

In that discussion, you'll also meet @ckeys @ruttgerbay @kjjjrader @loribmt @tedwueste @tmvanla and @waveg. @tmvanla's husband also experience Graft versus host disease (GvHD) and may have more to share with you.

You mentioned that you'd like to seek a second opinion at Mayo Clinic. You can self refer. Here is the contact information for all 3 locations: http://mayocl.in/1mtmR63

I know that chronic GvHD is rare and has few treatment options. Currently there are some clinical trials at Mayo Clinic https://www.mayo.edu/research/clinical-trials/diseases-conditions/graft-versus-host-disease

Lel, what treatments has your husband had? Is he on steroids?