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eileen123 (@eileen123)

Sudden Hearing Loss: Want to connect with others

Hearing Loss | Last Active: May 24, 2022 | Replies (85)

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I lost the hearing in my left ear in 1987 from having an acoustic neuroma removed at Mayo in Rochester. It was a miracle at the time that the team of an ear doctor and neurosurgeon could remove it without damaging my facial nerve. Evidently today doctors can remove acoustic neuromas and save the ability of the person to hear if the nerve isn't too badly damaged to begin with. I'm sure I grieved the loss of hearing in that ear, but more I think I still grieve the loss of not being able to do things socially and professionally I had always done, like attend conferences because it was impossible to hear in crowded rooms with background noise, chair meetings because I couldn't follow side conversations, go out to noisy restaurants, etc. I've really become very good at compensating; but often rather than dealing with the frustrations of not being able to hear well, I tend to avoid problematic situations and am less social. I am also much more wary about being in crowds where I can't tell where people are around me. Every five years or so I get my hearing in my good ear checked and ask if there is a hearing aid that will help me; but so far all the audiologist has offered is a transmitter that will send sound from my dead ear over to my good one with annoying static, etc. I have faith someone will come up with something better than that — it's too hard to imagine engineers can design rockets to go into space but not develop a decent hearing aid for my condition. Fortunately, being deaf in one ear hasn't kept me from doing the things I love most like traveling in rural areas in Africa, South America and Asia, although not being able to hear properly has made learning and speaking foreign languages really hard. Nancy – nla4625 member of lung group on Mayo Connect

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Replies to "I lost the hearing in my left ear in 1987 from having an acoustic neuroma removed..."

So well put, thank you. That is a huge issue, the social aspect. I will avoid crowds, loud restaurants, movie theaters, most group settings. I forgot about that, having been home for the last 10 Covid months!

I'm curious to know what device you were given to transfer sound from your deaf side to the hearing side? I think that may be a bicross hearing aid, but not sure. A BAHA can also do that. Regardless, it should be possible to get clear sound that way. Using a hearing loop, personal neckloop, etc. can enhance it further. I know several people through HLAA who have dealt with acoustic neuromas. Some more successful than others. It sounds like you get a lot of joy through travel. Good for you! PS: No question, binaural hearing is best but some of us just don't have that luxury.