Hello @robnhtown, Welcome to Connect. You mention that your current treatment over the past 4 months has you getting better daily. That's really good news. I'm not sure there is anyone that will be able to answer your question although I would guess you are not alone. Most of us who have done research here on Connect have been able to take solace that we are not alone and can learn from each other.

There is an older discussion - GBS (Guillain-Barre Syndrome): https://connect.mayoclinic.org/discussion/gbs-guillian-barre-syndrome/, where you can read what other members have shared.

I did find an older research article from 2010 using Google Scholar (https://scholar.google.com) that you may find interesting.
[Association between acute disseminated encephalomyelitis and Guillain-Barré syndrome in an adult].:
-- https://europepmc.org/article/med/21745776

Have you been able to discuss your thoughts with your doctors?